Data sharing platforms: instruments to inform and shape science policy on data sharing?

To enhance data sharing, platforms are being constructed to make clinical cohort data more findable, accessible, interoperable, and reusable. However, they can only facilitate data sharing through technical means, and may not be able of fully resolving the data sharing problem. In this article, it is shown how their design may help in addressing policy barriers to data sharing in the long-term. Platforms can be made into policy instruments that generate information on the data sharing process and the functionality of data access committees. Thus, allowing them to be used to inform science policy development, to monitor data sharing practices, and to steer funding prioritization for cohorts and data infrastructures themselves. So that, the creation of data infrastructures is closely connected to the policy evolutions in the open science context.

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